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GeneWatch
Volume 14 Number 4
July 2001
Human
Germline Engineering and Cloning as Women's Issues
By Marcy Darnovsky
Editorial: Choice in
the Biotechnology Age
By Suzanne Theberge
There
You Go Again, Monsanto!
Commentary by Martin Teitel
On Order
Commentary by Barbara Katz Rothman
Childbearing
in the Age of Biotechnology
By Ruth Hubbard
The Co-Opting of Women's
Choices
By Abby Lippman
The
Safe Seed Pledge: A Move Towards Food Protection
By Amber Beland
Interns Making A Difference
at CRG
Announcement: Adrienne
Asch Joins CRG Board
ABOUT GENEWATCH
GeneWatch
is Americas first and only magazine dedicated to monitoring
biotechnologys social, ethical and environmental consequences.
Since 1983, GeneWatch has covered a broad spectrum
of issues, from genetically engineered foods to biological
weapons, genetic privacy and discrimination, reproductive
technologies, and human cloning.
The centerpiece of the current
GeneWatch is Marcy
Darnovsky's analysis of new sex selection technologies.
We also present the first version of CRG's growing list of
security breaches and accidents at federal biodefense laboratories;
an update by Sujatha Byravan and Sheldon Krimsky of a planned
federal biodefense lab in Boston; Phil Bereano's much-needed
clarification of how international regulatory systems will
interact; and an overview of Chinese biotechnology by Nancy
Chen.
To find out more about subscribing
to GeneWatch and having it delivered to your doorstep six
times a year, just
click here.
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Human Germline Manipuation and Cloning
as Women's Issues
by Marcy Darnovsky
While the prospect of genetically
"redesigned" people challenges humanity as
a whole, it particularly threatens groups that historically
have been disempowered. And because human germline engineering
and cloning are so closely tied to reproduction, they
are of special concern to women.
The New Eugenics and the Commercialization of Reproduction
Already, prenatal screening and preimplantation diagnosis
make it possible to eliminate fetuses and embryos with
a number of identifiable genetic conditions. As disability
rights activists point out, these developments put women
in the position of "eugenic gatekeepers."
Inheritable genetic modification, to whatever extent
it turns out to be technically possible, would amplify
the powers of eugenic selection many times over.
If a new "free-market eugenics" were to take
hold, who would actually exercise "consumer preference"
for genetic "enhancements?" Who would decide
what was on offer?
Human cloning and germline engineering would move decisions
about reproduction further away from women, not only
toward doctors and technicians but also toward marketers
proffering the "enhancements" developed by
biotech companies. Women could find themselves simultaneously
losing ever more control of their own childbearing experiences,
and subject to vastly increased pressures to produce
the "perfect baby."
Writing in Time magazine, Lee Silver spins a
scenario set in the year 2024, in which a fertility
clinic advertises for "Organic Enhancement"
on "web sites frequented by women with baby-making
on their minds." "Why not give your child
the best possible start in life? Silver's hypothetical
ad campaign asks. But
"Keep in mind, you must act before you get pregnant.
Don't be
sorry after she's born. This really is a once-in-lifetime
opportunity for
your child-to-be."
The technologies of human genetic manipulation would
exacerbate existing trends toward "reproduction
for profit." Already, nearly all developments in
genetic science take place under corporate auspices.
Researchers work either for biotechnology companies
or in university laboratories with significant personal,
departmental, or institutional financial stakes in the
success of commercial biotech enterprises.
The Commodification and Geneticization of Children
Advocates of human genetic manipulation have projected
vivid scenes of a not-too-distant future in which parents
contemplate the "enhancements" they'll select
for their children. But their imagined futures are vague
about the lives of the children who might be born after
such procedures. And they have not speculated at all
about "unenhanced" children in a society in
which human germline engineering becomes normal for
certain classes.
One such advocate, University of Alabama philosophy
professor Gregory Pence, asks, "Would it be so
terrible to allow parents to at least aim for a certain
type, in the same way that great breeders...try to match
a breed of dog to the needs of a family?"
Talk of "breeding" children strikes most people
as repugnant in part because the notion of creating
a pre-selected type of child to meet "the needs
of a family" suggests that the child might be valued
for fulfilling his or her assigned function, or for
possessing certain characteristics, and only for those
reasons. Genetically engineered children would, in fact,
be designed to specifications chosen and paid for by
parents, from among those on offer by genetic technicians.
While unreasonable and unfulfilled parental expectations
can certainly flourish in the absence of genetic modification,
expectations grounded in technical claims and expensive
procedures would likely be far more pronounced. However
subtly, the prospect--or the illusion--of selecting
certain traits could make parents less likely to understand
their children as emerging autonomous beings who develop
in continuous interaction with their physical and social
environments.
How might a "designed child" experience herself?
Perhaps she would feel constrained by her real or imagined
genetic capabilities and propensities, and surrender
her "open future" to a mistaken conviction
that her destiny lay in her genes.
Actually, not only are we unable to foresee the physical
consequences of manipulating the genetic material of
an early human embryo, but also we have no way to reliably
predict the emotional or psychological effects of germline
engineering or cloning on children or families.
Human Genetic Manipulation and the Politics of Abortion
In their efforts to make the idea of designer babies
and human clones publicly acceptable, many advocates
have adopted the language of reproductive choice. They
have begun to argue explicitly that support for human
genetic manipulation--or at least, refusing to condemn
those who may want to practice it--is a "pro-choice"
position. A recently published pro-germline engineering
book, for example, is titled From Chance to Choice
(by Allen Buchanan, et al, Cambridge University Press,
2000).
This use of pro-choice language is likely to foster
confusion between the unprecedented and unjustifiable
practice of "enhancing" the genetic makeup
of a future child, and womens fundamental right
to end an unwanted pregnancy. It will take focused effort
to make it clear that altering the genes of one's children
is not among the reproductive rights for which so many
women and women's organizations have struggled.
The situation is further muddied because opponents of
abortion have been vocal critics of human germline engineering
and cloning. Their concerns about "playing God,"
and their opposition to the destruction of human embryos
that these technologies would entail, are often the
only arguments against designer babies and human clones
that are heard.
In fact, the U.S. legislative and policy debates over
human germline engineering and cloning have so far taken
place almost completely within the framework of abortion
politics. Opposition has been voiced mostly by abortion
opponents; pro-choice forces have for the most part
not yet engaged with these issues. Advocates of women's
health and choice will need to develop a voice for women's
reproductive rights that is firmly pro-choice and firmly
opposed to the genetic modification of human beings.
Lisa Handwerker of the National Women's Health Network
points out that although supporters of human genetic
manipulation and opponents of abortion typically conflict,
they share a tendency to focus their attention on embryos,
and to sideline both pregnant women and the children
whom women bear and raise. Anti-abortion activists often
depict human embryos as independent entities completely
separate from the woman in whose womb they are nurtured.
Similarly, discussions of genetically modified children
center on the early-stage embryo and the "improved"
future that scientists can give it.
Banning Human Genetic Manipulation: The Tasks Ahead
In the United States, where techno-eugenic interventions
are being most actively promoted, advocates insist that
the development and use of human genetic manipulation
technologies are "inevitable." But most Americans
oppose the creation of human clones and designer babies.
Indeed laws proscribing human cloning and germline engineering
are already in place in dozens of other countries around
the world.
Women's organizations in the U.S. and internationally
are positioned to play a crucial role in the political
mobilizations and cultural shifts that will be necessary
to challenge the techno-eugenic agenda. Though only
a few women's groups have taken positions on the new
human genetics, many have thought long and hard about
reproductive technologies. Abortion rights groups will
have little choice about whether or not to become involved.
They will increasingly be drawn into the politics of
genetic manipulation because supporters of germline
engineering and cloning have taken up their language,
keywords, and appeals. Other women's advocates will
want to engage with these issues as matters of equity
and social justice; of human rights, and of women's
and children's rights to health; and of the commercialization
of reproduction and commodification of life.
It will be far easier to prevent a techno-eugenic future
if we act before human germline engineering and cloning
are developed further, whether as technology, as ideology,
or as business interests. Rejecting the dangerous technologies
and horrific politics of genetic manipulation is crucial
if we are to protect what can be called, with chilling
new meaning, a "human" future.
Perhaps it is too obvious to state, but to make dramatic
improvements in the lives of children is well within
our reach. We can focus our energies and resources on
health care and prenatal care for women; on better nutrition,
health care, preschool care, and education for children;
and on restructuring work and social expectations to
allow families and friends more time together.
Proposals to genetically redesign children drastically
miss the mark. They substitute for relatively straightforward
social changes a hubristic technical fix that would
encourage a consumerist vision of children and all human
life.
Marcy Darnovsky, Ph.D., Exploratory Initiative on
the New Human Genetic Technologies, 466 Green Street,
San Francisco, CA 94133. Phone: 415-434-1403. Email
and subscriptions to GENETIC CROSSROADS: teel@adax.com
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